The Global Fibrosis Foundation
The Global Fibrosis Foundation is a 501c3 not-for-profit organization whose mission is to help educate patients, families and the medical community about Nephrogenic Systemic Fibrosis and other organ specific fibrosing processes; to support research into prevention and treatment; and to advocate on behalf of patients.
Information about the upcoming GFF Charity Dinner in New York City (May 14, 2010)
Our Mission
- Educate medical doctors through printed materials, on-line resources, sponsorship of symposia and conferences, and presentations at symposia and conferences
- Help develop diagnostic and treatment standards, and support the development of a diagnostic code for NSF
- Assist with the dissemination of treatment standards
- Support relevant research through grants
- Connect NSF patients with medical doctors who are familiar with NSF and other organ-specific fibrosing processes
- Support clinical trials of unapproved agents; support multicenter trials of therapies; and disseminate information about trials to patients
- Advocate on behalf of patients, doctors and researchers as needed with state, federal and international agencies